11 year old Mia from Hove has Rett Syndrome which means all those things she likes are impossible to do without assistance. With an Eye Gaze communication system she can express herself. Mia was able to access this equipment at school twice a each week, but to flourish she needed her own equipment. We awarded Mia to purchase Eye Gaze equipment, including a MyGaze camera and mounting plate.
Mia is busy fundraising this Autumn, even after she underwent a recent hip operation. Having recently taken part in the first UK Disability Pride event held in Brighton on 9th July, and having watched her Daddy recently abseil off Peacehaven Cliffs for the Martlets Hospice, Mia is returning to her own fundraising activities. On the 3rd September she is taking part in the big Parallel London event at the Olympic stadium where she is (for the second year) entering the 1km Sensory event, this year raising money for Rett UK, the national organisation supporting her condition. On 23rd September she is taking part in her first 5km Colour run. Mia will be using that as an opportunity to raise the final amount to pay for the additional speech equipment to accompany the Eye Gaze equipment that we recently funded. On 30th September, she will be doing her 3rd annual Altzheimer’s Society, 5km Memory walk in memory of her step-grandad Tony Gallup. She’s even managed to rope in another 8 people to join her! She also hopes to take part in the annual Santa Dash in December.
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